At a Thank You and Awards dinner on January 27, the ALS Association’s Golden West Chapter presented Ismail’s ALS walk team, Ismail’s Supporters, with an award for “Most Team Spirit” at the 2014 Ventura/Santa Barbara County Walk to Defeat ALS. … Continued
Cheryl was invited by Caz Cazanov, her close friend and an early reader of One Blink at a Time, to fly to Northern California to make a surprise appearance at Caz’s book club meeting in Lafayette, CA. Cheryl enthusiastically agreed. Cheryl … Continued
One Blink at a Time (formerly titled Tears, Laughs, and Triumphs), the book Ismail and Cheryl Tsieprati wrote about their 30-year journey with ALS (Amyotrophic Lateral Sclerosis, also known as Lou Gehrig’s Disease), is now available for purchase on Amazon.com. The … Continued
According to The ALS Association’s website (www.alsa.org) “as of Monday, August 25, The Association has received $79.7 million in donations compared to $2.5 million during the same time period last year (July 29 to August 25). These donations have come … Continued
More and more people throughout the country and the world, including celebrities, politicians, and corporate giants are videotaping themselves dumping buckets of ice water on their heads and then challenging their friends to do the same to raise awareness and … Continued
The greatest fear for people living with ALS is that there will come a day when they become “locked in” – so completely paralyzed in the late stages of the disease that even the simplest of muscle movements have been … Continued
What is ALS? Amyotrophic Lateral Sclerosis (ALS) is often referred to as Lou Gehrig’s Disease. It is a progressive neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. It can strike anyone. The … Continued
On May 8th, National ALS Awareness Day, Cheryl joined other ALS Advocates from around the United States to go to Capitol Hill to increase the awareness of Congress about the impact of ALS on the lives of people living with … Continued
May 8th is National ALS Awareness Day, and the ALS Association will be holding its 2014 Public Policy Conference in Washington DC May 7-May 9. Advocates will meet with Members of Congress to share their personal ALS stories and explain why more must be … Continued